Roots and resiliency for native American young people

Aim: The presentation shares traditional Native American knowledge about wellbeing and caring for a person's body, heart, connection to the Creator, ancestors, and the land Methods: Drawing upon community narratives and traditional ancestral knowledge themes pertinent to the topic will be presented. Narrative Review Results: Ancestral knowledge is essential to access and practice in? community care and healing. This knowledge is sacred to the lives wellbeing, and continuation of traditional ways for Confederated Tribes of Warm Springs (CTWS) people. CTWS young people play an important role in these practices for their community and elders. The practice of taking CTWS children from families was a pivotal moment that pushed forward the concept of mental health for the CTWS. The threat of climate change, and the COVID-19 pandemic's activation of memories of imposed isolation between our people and from traditional ways continues to impact our young people. The process of healing from historical and present-day traumas includes grieving those losses and healing from addictions, as well as physical and sexual abuse Conclusion(s): Rebuilding and strengthening connections to the land Chuush (water in Sahaptin language), food gathering, and being with each other, is central to our young people's, and community's, healing The path of returning to our traditional understanding of the knowledge of what the Creator has provided for the CTWS people will be shared. This knowledge is useful for the care of young people Native and non-Native alike.

The effect of intervention using an emotional recognition coaching companion robot on the elderly people with depression

Aims: During the COVID-19 pandemic, care for the elderly in the community was greatly limited. Accordingly, the demand for alternative community care have increased to cope with changing situations. In this study, we tried to find out whether the companion robot improved mood state and related problem in depressive or isolated community dwelling elderly. Method(s): For 186 community dwelling elderly who have received social welfare service due to depression or social isolation, we provided companion robot that could support their daily living. The robot was equipped with special program that could recognize and respond to the participant's own emotion. It was part of behavioural activation techniques which is one of powerful treatment for depression. The self-report questionnaires were used to measure changes in cognitive function, depression, suicidality, loneliness, resilience and satisfaction of life. Outcomes were measured before using companion robot and after 3 months, and we compared them. Result(s): The elderly using companion robot for 3 months showed improved cognitive function, depression (p < .001), suicidality (p < .001), and loneliness (p = .033) in the self-report questionnaire. Resilience (p = .749) and satisfaction of life (p = .246) were also improved but not reached significance. Conclusion(s): These findings showed that the use of companion robot with emotional recognition coaching program could help improve depression, cognitive function, loneliness and suicidal ideation. In particular, this effect was also useful for those who were diagnosed with depression. Also if we can put more techniques of behavioural activation programs into robot, it could be useful in community care for depressive and isolated elderly.

Some key aspects of telemedicine development to support human illness: a systematic review

The aim of this research is to describe the use of telemedicine applied to patients characterised by a particular state of illness, which often drives them toward a frail and chronic status, in a systematic manner. This work employed the Tranfield approach to carry out a systematic literature review (SLR), in order to provide an efficient and high-quality method for identifying and evaluating extensive studies. The methodology was pursued step by step, analysing keywords, topics, journal quality to arrive at a set of relevant open access papers that was analysed in detail. The same papers were compared to each other and then, they were categorised according to significant metrics, also evaluating technologies and methods employed. Through our systematic review we found that most of the patients involved in telemedicine programs agreed with this service model and the clinical results appeared encouraging. Findings suggested that telemedicine services were appreciated by patients, they increased the access to care and could be a better way to face emergencies and pandemics, lowering overall costs and promoting social inclusion.Copyright © 2022 Inderscience Enterprises Ltd.

Developing Contemporary Survivorship Clinic for Recipients of Hematopoietic Cell Transplantation: A Single Center Experience

Introduction: Survival after hematopoietic cell transplantation (HCT) has improved tremendously over the last few decades. HCT survivors are at increased risk of long-term complications and secondary cancers. This poses unique challenges to the HCT-related healthcare system given the growing need for survivorship care. Developing a HCT survivorship program with a dedicated clinic to survivors ensures equitable access to care and ongoing patient education. Herein, we describe our program survivorship model and our initial experience. Method(s): The Moffitt Cancer Center (MCC) survivorship clinic (SC) planning committee was initiated in September 2019. The SC was launched in January 2021 with the mission to provide high-quality, comprehensive, and personalized survivorship care and to empower patients and community health care providers with education and a roadmap for screening for late effects. The SC initially focused on allogeneic (allo) HCT patients and later opened to autologous (auto) HCT recipients in February 2022. HCT patients are referred by primary HCT team after HCT with an emphasis on preferred timeframe of initial SC visit no earlier than 3 months but less than 12 months from HCT. SC is located at 2 physical locations: main campus and satellite, with virtual visit options to account for the distance from MCC and COVID considerations. SC applies a consultative model. SC is staffed by dedicated advanced practice professional (APP), supervised by SC faculty. The scope of SC care includes but is not limited to prevention of infections (education, vaccinations), surveillance of late effects (endocrine, pulmonary function, cardiac, bone health), and general cancer screenings (breast, colon, skin cancer). Patients' clinical data from SC inception to August 2022 were reviewed. Result(s): From January 2021 to August 2022, a total of 138 patients were seen in SC. The majority were seen in person (62% in clinic, 38% by virtual visit). Median age was 58 years (range, 19-82). Median time to first SC visit was 21 months (range, 3-1464) after HCT. Allo HCT was the most common type of HCT seen in clinic (87%, n=120). Most common diagnoses were acute myeloid leukemia (43%, n=59), myelodysplastic syndrome (17%, n=23), and acute lymphoblastic leukemia (10%, n=14). Only 17 patients (12%) were seen in 2021 but the volume increased significantly in 2022. Currently there are more than 10 patients seen in SC per month. Conclusion(s): We report successful experience in launching a contemporary HCT SC despite the challenges of an ongoing COVID pandemic. As a stand-alone cancer center, we serve a wide geographical location with subspecialty and primary care providers dispersed throughout the community. Our consultative model and experience could provide a useful guide for other programs. In 2023, we plan to expand our SC to a broader population of patients receiving other cellular immunotherapies.Copyright © 2023 American Society for Transplantation and Cellular Therapy

Supporting survivors of institutional child sexual abuse during the COVID‐19 pandemic: A qualitative study of not‐for‐profit community and legal organisations in Greater Western Sydney

Before, during and since the Australian Royal Commission into Institutional Responses to Child Sexual Abuse (2013–2017), not‐for‐profit community and legal services have been critical in supporting survivors of institutional child sexual abuse. This qualitative study aimed to explore the perspectives of community and legal service practitioners operating in Greater Western Sydney regarding the ongoing impact of the COVID‐19 pandemic on the service system for survivors of institutional child sexual abuse. Semistructured interviews were conducted with 21 practitioners at 15 community and legal services. Through thematic analysis, the study identified five areas of concern regarding service provision and COVID‐19, including difficulties in navigating shifts to remote service delivery;changes in service accessibility;complications in accessing the National Redress Scheme;safety challenges for clients;and safety challenges for practitioners. The research identified a need for services to finesse frameworks that ensure remote services can be delivered safely for clients and practitioners alike. Priorities include adequate funding for technology and infrastructure, supporting survivors of abuse perpetrated online and encouraging effective coping strategies for practitioners who undertake trauma support work from home. Future research should consider how shifts to remote service delivery have impacted survivors of different demographic groups and the survivor support workforce. [ FROM AUTHOR] Copyright of Australian Journal of Social Issues (John Wiley & Sons, Inc. ) is the property of John Wiley & Sons, Inc. and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full . (Copyright applies to all s.)

Ties that bind: Young people, community and social capital in the wake of the pandemic

The connection that young people have to their local neighbourhood and community has been shown to impact on health and wellbeing, particularly for those living in the most deprived areas. We report on a qualitative participatory study using photo elicitation methods undertaken in three deprived neighbourhoods across London exploring concepts of community and social connection, with young people aged 13-24 years, against the backdrop of the COVID-19 pandemic. The construct of social capital, referring to the extent of solidarity and connection between groups, has been shown to impact on pandemic related outcomes, and is used in this study as a lens to enhance understanding of young people's experience of the pandemic. Young people created heterogenous physical social ties across class, ethnicity, and geographical area which were important during the pandemic, although these may be jeopardised by a range of factors including fear of violence, mistrust of those in power, parental control and place-based inequity. The isolation and localism enforced by the pandemic encouraged young people to pay more attention to the value of local connections they built up both with people and place. Place-based research needs to continue a dialogue with young people, acknowledging and drawing on existing networks, community assets and cultural beliefs. The impact of COVID-19 on accentuating existing inequalities means that the need for place-based action, addressing the social determinants of health and involving the experiences and input of the young, is more vital than ever.Copyright © 2022 London School of Hygiene and Tropical Medicine

Investigation on the blood glucose management of diabetic patients during COVID-19 in Wuhan.

Objective: To investigate the blood glucose management of diabetic patients during the fight against corona virus disease 2019 (COVID-19) in Wuhan, China. Method(s): A questionnaire survey was conducted on diabetic patients receiving hypoglycemic drugs in wuhan, hubei province from February 16, 2020 to February 20, 2020. The questionnaire included participants' basic information, the management of blood glucose, and the prevention and control of COVID-19. SPSS 19.0 was used for statistical analysis, and chi2 test was used for comparison between the two groups. Result(s): A total of 152 valid questionnaires were retrieved. 86 cases (56.6%) diabetic patients achieved glycemic control. 80 cases (52.6%) could regularly monitor their blood glucose. 48 cases (31.6%) had the difficulty in the management of blood glucose for purchasing medicines. They also had the difficulties in adjusting blood glucose in the outpatient of endocrinology departments (31 cases, 20.4%), adherence to appropriate exercise (28 cases, 18.4%) and eating the balanced diet (16 cases, 10.5%). When faced with medical problems, 73 cases (48.0%) seek help from hospital out-patient clinics. Nearby pharmacies (78 case, 51.3%) or hospital outpatient (63 cases, 41.5%) were the main ways to purchase medicines for diabetic patients. 133 cases (87.5%) took medicines regularly. 39 cases (25.7%) and 17 (11.2%) diabetic patients were affected by the COVID-19 epidemic and changed or discontinued the original treatments. There was statistically significant in the proportion of discontinuation of hypoglycemic drugs between different drug treatment regiments and subgroups with diabetes course (chi2=13.30, P<0.01;chi2=8.72, P<0.05). Only 16 cases (10.5%) showed that their community health service organizations had specially trained diabetic management team. Conclusion(s): This survey suggests that the diabetic patients in Wuhan had not paid enough attention to blood glucose monitoring, and their blood glucose control standards need to be further improved. In terms of the present problems, more comprehensive blood glucose management measures need to be developed to help diabetic patients fighting against COVID-19.Copyright © 2020 by the Chinese Medical Association.

'It all stems from relationship': Effectiveness of a crowdsourcing contest to elicit community ideas on how to build trust between healthcare providers and community about COVID-19

Objective The COVID-19 pandemic requires a nimble approach to building trust between healthcare providers and community. Crowdsourcing is one community-engaged approach that may be effective at engaging marginalised communities to identify ways to build trust. This early-stage innovation report assesses the effectiveness of using a crowdsourcing contest to elicit community ideas on how to build trust between healthcare providers and community about COVID-19 and promote community engagement about vaccines. Methods This mixed-methods study conducted a qualitative assessment of crowdsourcing contest entries and evaluated online community engagement via social media analytics (reach, video views, engagement). Themes from contest entries informed the development of community leader video interviews. Qualitative data from contest entries were digitally transcribed and analysed using axial coding. Results Contest participants (n=19) were European Americans (n=10), African Americans (n=8, 87%) and American Indians (n=1), the majority of whom identified as women (n=18) and were 18-80 years old. Contest entry recommendations included: (1) partner with community stakeholders and providers, (2) improve access to credible information from trusted sources, (3) use multiple channels of communication, and (4) use clear and plain language. Conclusion Crowdsourcing contests coupled with public education are beneficial community engagement tools to identify new ways to promote trust between medical professionals and diverse community members about COVID-19. Crowdsourcing contests also provide opportunity for partnership and critical dialogue between healthcare professionals and community leaders.Copyright © 2023 BMJ Publishing Group. All rights reserved.

Implementing the interRAI Check-Up Comprehensive Assessment: Facilitating Care Planning and Care Coordination during the Pandemic.

Background: Long-stay home care patients are a large population of older adults with multi-morbidity and frailty. The COVID-19 pandemic posed challenges to executing care coordination and completing in-home assessments due to provincial mandates restricting in-person care. We evaluated the implementation of the interRAI Check-Up Self-Report instrument administered by phone and video. Methods: We report on a mixed-methods study, which involved the collection and analysis of survey and focus group data. Care coordinators from two regions in Ontario who had implemented the Check-Up at least once between March 2020 to September 2021 were recruited via convenience sampling. Results: A total of 48 survey respondents and 7 focus group participants consented to the study. Advantages of completing the Check-Up over the telephone or video call included: reduced travel time, reduced risk of disease transmission, familiarity with the assessment questions, and reduced time spent administering the assessment. Limitations most frequently reported were: the inability to see the living environment, hearing impairments, inability to observe non-verbal responses or cues, language barriers, difficulty building rapport, and difficulty understanding the patient. Conclusions: The Check-Up was advantageous in providing sufficient information to create a care plan when administered over the phone and by video. Implementation of the Check-Up assessment was facilitated by familiarity and alignment with other interRAI assessments. Our results indicate that population characteristics need to be taken into consideration for administration of self-report style of assessments.

Active community search strategies for COVID-19 control.

Introduction: The active community search is widely used in field practice and allows to identify symptomatic people, criteria of risk of contagion, control of the virus, knowledge of the population at risk and, in addition, allows the analysis of the relationship of these factors with the increased risk of affecting health. However, it is difficult to find a consensus on this aspect. Objective(s): To identify active community search strategies that have an effect on the control of COVID-19. Method(s): A systematic search was conducted in the PubMed, Science Direct and LILACS databases, also in Google Scholar, Open Grey and PROSPERO, from December 2019 to January 2021. The selection criteria were previously defined with respect to the intervention and the research topic of the articles consulted. The protocol was sent for registration in the International Prospective Register of Systematic Reviews (PROSPERO). Registration number: CRD42020160617. Conclusion(s): Of the two identified strategies, the home visit of the medical team made up by students, professors and other health professionals stands out. It is necessary to take this result with caution because they are studies from the same country, although the importance of community participation in public health surveillance is reiterated.Copyright © 2022, Editorial Ciencias Medicas. All rights reserved.

An evolving engagement programme for patients with photodermatoses

We previously reported on our experience of an in-person Scottish Photobiology Service (SPS) patient engagement event in 2019 and of its utility in defining what matters to patients with photosensitivity. We identified key issues with delays in referral from primary care, lack of availability of peer support and a need for disease-specific information to raise awareness of photosensitivity for family and employers. Through a follow- up workshop, we identified a workstream of activities planning to address these issues, which were modified by the subsequent COVID-19 pandemic. However, we successfully moved our programme to a virtual platform, and we report on our progress. Twice-yearly virtual TEAMS patient engagement half-day events, attended by patients and staff, provided patients with a forum to discuss with each other issues that they have identified as being important to them. These ranged from the isolation, anxiety and embarrassment associated with photosensitivity, dealing with friends who do not understand their condition, through to coping mechanisms and practicalities, such as sourcing sun protective clothing, dealing with sports activities and photoprotective measures in schools. The virtual events have received extremely positive feedback both in terms of content and utility for patients, as well as the convenience of the virtual format. To supplement these activities, we have also distributed twice-yearly SPS newsletters since 2020, initiated at the start of the COVID-19 pandemic, to ensure our patients knew we were there for them, despite the challenges of the pandemic and, again, this was most positively received. Regarding delays in referral from primary care, patient feedback indicated that this was mainly due to not being taken seriously, possibly due to a lack of understanding of photosensitivity in community care. We are addressing this by developing a 'photosensitivity red flag' poster for distribution throughout primary care in Scotland to raise awareness of the symptoms to look out for in photosensitivity conditions. Finally, we have also embarked on creating a series of diseasespecific podcasts. These involve an informal discussion between a patient with photosensitivity and a consultant photodermatologist, with a mediator present, to raise awareness of the true impact of a range of photodermatoses on many aspects of life. We demonstrate this ongoing programme of diverse patient engagement and educational activities in photodermatology, to highlight the model of a multifaceted hybrid approach to provide additional support for patients with photodermatoses. Acknowledgments: we wish to acknowledge all our SPS patients, their families and staff for their invaluable contributions.

Social models in leg care: understanding Lindsay Leg Club volunteering

Background: This qualitative exploratory research was the first study to explore Leg Club volunteering through focusing specifically on volunteers' narratives. Aim(s): The aim was to understand volunteers' motivations and experiences and to outline the crucial steps for maintaining volunteers' positive trajectory towards providing social support. Method(s): A qualitative study based on semi-structured interviews with volunteers from UK Leg Clubs was undertaken. Interview transcripts were analysed using a constructivist reflexive thematic analysis. Result(s): I recruited 16 volunteers from three UK Leg Clubs. The study explained the motivations for volunteering (started as members or companions;retired individuals with a strong sense of purpose;emotional, social and mental health reasons), experiences of volunteering (satisfaction from helping;meaningful social connections;personal growth) and volunteers' objectives (desire to recruit more volunteers;concerns about long-term capacity to return to pre-pandemic activities). Conclusion(s): The study outlines the conditions necessary for Leg Club volunteers' continued success in the social dimension of leg care. Declaration of Interest: Dr Anna Galazka is a volunteer project consultant for the Lindsay Leg Club Foundation. The research was funded by Cardiff Business School Research and Scholarship Seedcorn Funding Scheme.Copyright © 2023, OmniaMed Communications Ltd. All rights reserved.

Fortification is required in the rear to win the battle of epidemic prevention and control.

The current epidemic of Corona Virus Disease 2019 (COVID-19) poses a serious threat to people's health and lives. Following the national policies and deployment, medical community in China invests large amounts of medical resources to help Hubei. However, some hospitals nationwide have suspended outpatient and inpatient services. The authors analyze the underlying causes of suspension of medical services and its harm to patients, and summarize the optimization of disease diagnosis and treatment during the COVID-19 outbreak. In further, they propose reasonable suggestions on safe medical management in general hospitals outside the epidemic area, in order to attract the attention of medical institutions and medical colleagues.Copyright © 2020 by the Chinese Medical Association.

Using social media to recruit stroke survivors to the HEADS: UP Online randomised control trial, a stroke-specific psychological self-management intervention: reflections and lessons learned

Introduction: Social media has emerged as a useful and potentially costeffective recruitment route for clinical trials particularly during the COVID-19 pandemic. This paper presents recruitment results and lessons learned from using social media for recruitment to the HEADS: UP Helping Ease Anxiety and Depression after Stroke Online randomised control trial. Method(s): We recruited UK-based community-dwelling stroke survivors with self-reported anxiety and depression. Our recruitment strategy included community networks and social media platforms. Result(s): Recruitment over 22 weeks resulted in 120 leads (5.5/week), with social media, primarily Facebook and Twitter, contributing 38 leads (31.7%;1.7/week). We enrolled 64 participants (female n=36 (56.3%), mean age 56.3 yrs, SD=11.2 ), with 28 (43.8%;female n=15 (53.6%), mean age 53.0 yrs, SD=11.3) recruited through social media. Facebook generated 21 (75%) of 28 social media participants, with Twitter contributing 8 (28.6%), including one participant from both Facebook and Twitter (3.6%). Facebook allowed for recruitment from stroke community groups and contact with key group members who posted regularly on our behalf, aiding credibility. Twitter provided the opportunity to recruit without gatekeepers, but required considerable researcher time and effort spent networking (i.e. Following, Liking, requesting Retweets) and developing new content to post, which stretched our limited resources. Conclusion(s): Social media was an effective, integral strategy for recruitment. However, substantial resources were required to develop content and manage our online presence. Future research could benefit from costing researcher time into funding applications and investing time in identifying and making contacts within population-specific pages or groups.